Tuesday, December 22, 2009

Holidays, Kids & The Grinch

Ok SO I have my share of fun at work playing the Grinch who stole Christmas. It started out by telling the clients I canceled Christmas and were all going to work right through it. They all laughed and said I couldn't cancel Christmas. SO a couple days went by when last Friday I went and took the 25th off the big calender on the wall and you should have seen the look on their face. You would have thought someone died on the spot. One client said "Oh come'on Santa is coming. So the staff in the room got together with the clients and posted a note on my back that said the Grinch that stole Christmas. I acted like I didn't know it was their and every time I walked in the room they just laughed. On Monday was the Christmas Party for them and I just had to play it up. Santa came in and I said who let him in here. It was so funny they thought they fooled me. I just love my new job it is so much fun to see how much they grow with you. Needless to say as they have left for home this year for the Holidays they all have come to tell me they won't be here to work on the 25th and I act as if I am going to be all alone on Christmas working.

For Christmas I will be going to Boise to spend it with Mick. He is still in the hospital but doing so much better. He still has a couple of weeks to go but who knows. The hospital has dragged things on with getting his Trech looked at. He can do most everything for himself and all his test look great. The only hold up is is trech.

Jeffery and I will do his Christmas on Christmas Eve. He has opt to stay home his best friend Chris is coming home from the military. Jeff can't wait to see him.

THANKS Janet for bringing Dylan home for the holidays. I owe u so much. I think it would be good to have him down for the week.

I hope to make it over to see Judy and her family soon but well see what happens.

If I had one wish for CHRISTMAS it would be that us as sibling could become closer..........

Oh one last note THANKS Dad & Darlene for all your kindness!!!!!!

Saturday, December 12, 2009

Great News!

Mick Update: Mick was moved to Meridian to a Acute Care hospital in Meridian Idaho and is doing well. This is a place where you go when you have alot of things going on and need Therapy to. Yesterday was an interesting day he had texted me he needs to see his Dr that is there and if I could help. Being I am back home I called and they said she was in the building still. So I arranged she paid him a visit. He wanted to take his Mestinion again which he took for his MG which is in remission. He thought if he took that again he would feel better. She suggested he didn't need it. So funny thing is he had his speaking valve in and called me on the phone and asked me. I told him his body has been through so much trauma it is now reacting to his therapy of moving around more and is in the defense of wanting it to relax. I told him to wait a couple of months before he took the med again to see if he really needed it. I think he thought it was going to be his quick fix to get out of the Hospital. I'll tell you the highlight of it all is him calling and using his speaking valve. There is nothing like hearing someone say "I Love You" when they can't speak most of the time.

Janet you asked if he will be home by Christmas? I hope so I am hoping to bring him home the 23rd or 24th. It just depends on how well he is doing. He has a ways to go and when he does get home I will stay with him for the first week at his place. My place is way 2 cold for him. He likes it at 100 degrees and I like my place maybe 70. Plus I have 2 many steps for him to go up.


I have your Gift Janet to send I need your address. As fro Christmas unsure and it's up in the air right now. Dylan wants to stay home with his dad this year. Jeff unsure what he has plans for. I did decorate for it all will try and post pic's.

Monday, December 7, 2009

Mick Update Great News

I know that it has been a while sense I have got to write so tonight I got the best news I could from the hospital. Mick is off the ventilator now. Let me go back a few weeks tho....
Mick did have a trach put in after thanksgiving and it all went well for him. He also had his feeding tube moved to his stomach. A day after he received the Trach I went to Boise where I had to deal with a very angry person who didn't quit understand what was happening or why was he still in the hospital. He couldn't understand why he could not leave with me at night and why I could not stay with him. After a couple of days of fighting him and getting him to understand I had to lay down the law of I was not going to be abused by his angry attitude. I told him I would go home if it continued. By the 3rd day he was sound asleep all day so I went home and that night he woke fighting when a Nurse came in and told him that he can fight them or follow the rules to get out. Mick calmed down and has sense been calm enough to follow the instructions to get off the ventilator. I am now hoping to move him to Walla Walla for rehab. I will go down again Tuesday to be with him and work with the hospital to get him moved. Im so excited about it I can hardly wait to get to Boise now. Mick is off all mind altering meds and the best part of this his MG in remission. As I tell him this is what you wanted.

Ill keep you all posted

Monday, November 23, 2009

I'm Very THANKFUL

When I think of what I have to be thankful for I think of a bunch of things...........
  1. I'm thankful for my son Jeffery that he is a good kid who is not on drugs and drinking and most of all a SMOKER!
  2. I'm Thankful for my son Dylan Pots who always remembers to say I Love You before he gets off the phone with me!
  3. I'm Thankful for my daughter Samantha and giving another family the gift of a child.
  4. I'm Thankful for having Mick in my life and even tho it has been hard with him in the hospital it just draws me closer.
  5. I'm Thankful for Dad and Darlene for opening up their home and letting me stay there during this difficult time.
  6. I'm Thankful for my Job that has been so understanding while I take time to go to Boise.
  7. I'm Thankful for having such a good siblings that always have the right words on my blog when I am having a bad day.
  8. I'm Thankful for my Mother who calls me and listens when I need to just talk.
  9. I'm Thankful I'm alive and loosing 25 pounds and keeping it off.
  10. MOST OF ALL I AM THANKFUL FOR HAVING A GOD I CAN PRAY TO WHEN EVER I NEED TO AND I KNOW HE IS LISTENING TO ME!

I will not be having the traditional Thanksgiving Dinner this year but spending the day with Mick in the hospital. A bunch of friends have decided to put there dinner on hold until Mick comes home and then get together and have Thanks Giving Dinner together. I did think about going to the Mission in Boise and seeing if I could help serve the meal for a couple of hours or help clean up.

As for Mick he will be having surgery on Friday. He is still in ICU for now and has still on the ventilator. He has a couple of weeks in the hospital to go. He is very weak but making progress. I have been working with him with moving his legs and sitting up in bed. It has been paying off. He has been getting dialysis for a medication overdose. Other then that I can't wait to bring him home.....

Tuesday, November 17, 2009

Mick Update

Set back today and feel just so let down. Mick was scheduled for surgery tomorrow (WED) and I had planned to come to Boise, but I get a phone call saying he has pneumonia and cant have surgery and they will re-evaluate it in 3 days again. The Dr's don't think he would benefit from a trech now and I argue that living on a ventilator is not what he wants. I got a little upset today with the whole thing for I looked forward to this being done but I guess I need to pray and have patience. It will all work out I know it will!

Recently I got a call from the social worker for a medical guardian for him and he only has a brother. His brother said he would like me and him to make any decisions for Mick together. That is a change for me. His brother has been so supportive to me.

So Dad and Darlene I will be down on Friday night and will stay for 5 days or more. Don't change the sheets or clean the towels I will be back. Thanks for all your support and having someone to talk to at the end of the day while I am there.

I wonder if God is giving me extra time to relax and rest for I will need it later. I have been so tired lately.

Thursday, November 12, 2009

Does God Give US Only What We Can Handle?

I ask more and more each day if God really gives us only what we can handle? I also wonder why I was blessed with not only going through such trials as having not only one boyfriend but 2 who has been hospitalized with serous health issues. Leaving me to be by their side and I am not talking a brief stay in the hospital I am talking where you spend hour after hour watching them on a ventilator and as they struggle to understand why. Where I am reassuring them that they will survive this. That this will pass and if were lucky we will have 1 more year together.

So to update you with my last blog. Mick broke his neck in 2 places and cut his ligament in his neck. The Dr says he is just so lucky to walk. Well he had surgery on Saturday and after surgery he did not do so well coming off the ventilator. They had to put it back in and put him in ICU to watch him more close. ON Sunday he got off the ventilator and was doing well and sitting in his chair and was being moved to the floor for recovery. Once there I went home for a couple of days and in the night he pulled his feeding tube out which gave him his medication he needs for his disease. He also had damage done to his throat so he could not swallow anything without it going in his lungs. So Monday he refused to have the tube put back in because he was waiting for me to show up in Boise. After missing 3 doses of his medication he had went code blue which at this time he was brought back but put back on the ventilator. That night I got to Boise and the next morning he was taken off the ventilator when he choked on something and went code blue again and was back on the ventilator. SO the Dr said he wants to put a trech in his throat and he was scheduled for surgery Yesterday at 5pm when the Dr came in at 3pm and said there was no way due to the neck injury and the increase of infection. SO we were told next Wed or Thur he will have surgery to have this done but will have to stay on the ventilator until then. I came home to work for a couple of days and will be back this weekend. This has taken such a big toll on us.

Then I ask where is all my family or friends when I am feeling all alone at night and just need someone to cry to because I am so overwhelmed and just want to hear it's ok to feel the way I do. Tonight I tried calling 3 family members and 3 friends not one person answered the phone. Are we just so wrapped up in our own lives we don't have time to hear whats happening? Or just lend some support? Tonight I am home away from Mick and all I wanted to do is just reach out to talk and let out my frustration and talk to someone sense he can't talk.

I do have to send a special THANK YOU to Dad and Darlene for lending me their spare room while I stay in Boise. I know I don't visit much but I am so stressed with everything when I am there. Thanks for turning on the heat before I get back in at night and feeding me, I appreciate everything you have done to help.

Saturday, November 7, 2009

Prayers Needed for Mick Alam

Hello Everyone,

Everyone please pray for Mick! Let me explain first. About a week and a half ago I was up at his cabin it was the first day of ELk season and it had snowed and a bunch of us were at another Elk Camp when we got home he had fell off his step. Well he complained of his neck hurting and as time went on it just got worse for him. He thought just maybe this will go away by taking pain medication. Well it didn't and finally went to the DR and he set him up with a MRI and XRAYS. Yesterday he went and the DR called saying we need to send a ambulance to your cabin. The Dr wanted to fly him to Boise for he had very serous neck injuries and one false move he will be a quadriplegic. If you know Mick that is not ok with him, one being in a ambulance and 2 in any wheel chair. SO he has agreed to come down this morning with his hunting partner to this hospital and he will have his neck stabilized and then I will take him to Walla Walla hospital where they will decide what to do. He needs your prayers! Mick has a disease called Mystathenia Gravis. Plus he has Muscular Dystrophy. Being he has this it is hard for him to have surgery due to ansthiea. He choose Walla Walla because his Neurologist is there and has treated him for years there.

I know now God gives us what we can handle and even if he was in a chair I would take care of him NO PROBLEM! I just need your prayers for a good recovery with him. I will keep you all updated.

Thanks Every One For Your Help!